so today I had to 'give somone bad news'. In my training years we actually get educated how to do this well, we are given tactics, we are taught how to read certain ques and give people time and space to digest the information etc...but it still eats me up inside when I am the bearer of bad news, I can never help but feel I have failed someone even though I know there are situations where nothing more can be done.I guess that is the samoan in me, the people pleaser. Today I had to tell a samoan man, being the only samoan speaking member of my team, that he was dying. No he does not have cancer or some mysterious disease, over the years his kidneys have been failing , slowly but steadily. yes he has known about this, he slowly has noticed he can walk less and less of a distance, and little things like doing the washing have become more and more of a chore,slowly he has given up social things like community gatherings and visiting friends....but as it was secondary to his diabetes and long abused lifestyle..there was little reversibility of the damage that was found much too late. Now it has gotten to the stage where it is life threatening. The debarkle however is this. Renal dialysis today, in this modern world, is geared just for this type of problem.It acts as a stand in, not so perfect,mechanical kidney for you. If you think about it , it probably is just a means to prolong the dying process, because if you stopped it,death would ensue quite quickly, but with it, people are actually able to live decent lives for a period of time, be it a few more months, years and maybe longer. The problem is- this elderly softspoken gente man, tells me he has been on a 'visitors' permit for the last 10 years...(he is actually an overstayer) his entire family have moved to nz and his children are now actully citizens. His applications however have been declined becoz of his poor health. The government is not willing to fund for him to go onto dialysis.They understandably prioritise the allocated funding to their own citizens. They will fund non-citizens to have 'lifethreatening' treatment, i.e if someone got hit by a car, no matter what citizenship you are you will get the operation...but in his case...going on dialysis is not a 'lifethreatening' procedure. The hospital already knows about him, he already owes them $10,000 for an operation he had on his neck many years ago. And they stand tall in their policies. This man does however have the option to go home ( to samoa) and have dialysis as we now have a dialysis unit, this treatment will buy him a few more good years and who knows maybe even longer...but, this man has no more relatives back home.Every single family member is here, and once he leaves the country..there will be no way he can return . So he has been told of all of the above, and very quietly after thinking hard tells us he choses to stay in NZ....he wont say it, but he has chosen to die. To die a slow and painful death. His children who are all tearful by this point in the conversation..ask again and again if there is nothing else that can be done.I feel terrible.
Now after much correspondance with the physicians, the managers, the social workers, the lawyers....the decision has been made that he will most likely recieve dialysis...probably because no one wants to be soley responsible for letting him waste away when we actually have the means to treat right here, regardless of the arguements to ration resources and costs etc etc..however the unspoken words are that the hospital will still make him pay, his children at present all work minimum wage jobs with each one contributing to his earlier debt, who knows the new burden they will take on now..i have recently heard a similar story of a man who ended up dying anyways, whos family struggle to pay a $300,000 dollar debt. Shocking isnt it. What would you do?? Would you want your whole family to relocate and start their lives over??and what if you cant even afford to do that ( as this family ) I feel like this man is making the most selfless decision a human can. He doesnt seem like a pessimist who is just 'givin up'. He thought about his family, he thought about the costs, he considered what he will have to endure and suffer, and he put himself foward as the one who would suffer.
5 comments:
malo doc,
when you have just saved the life of a patience the elation one feels keeps you on a high for quite a while but when u have a patient who you know will die coupled with the strenuous situation his family has to cope with it is quite difficult as there is not much one can do about it. Life can be really difficult at times but I guess a prayer offered up in earnest to the Lord to extend his grace to this man and family is one of the few things we can do.
My dad is a retired medical doctor and growing up we could tell when he'd have one of those "difficult" days but it was a profession he loved and dedicated his younger years to. For that I can certainly appreciate your situation and admire your commitment to your life's calling.
God Bless u N Yours.
Sorry, I meant patient obvious sign of a brain dat needs sleep and not surfin' da net.
cheers again.
What an amazing man indeed and very sad situation. Who to blame? He's been in NZ that long, probably working paying taxes anyway and they still won't let him be a citizen. He risked everything by moving to NZ to provide a better life for his family and I guess in a way he feels he has fulfilled his tasks in life and he'll end it now so his family can live that dream! I hope things work out for him and his family.
FANX heaps guys for the kind comments- just as an update, this man has been accepted for treatment and apparently the NZ govt are leaning towards the 'sympathetic vote' in granting his residency- i still say 'watch this space' to that. He has also begun dialysis treatment and is a renewed man, his fams are all smiles these days which is a nice change i guess from a couple of weeks ago when a death sentence was handed to them!!
What a great relief for him as well as his family. He has been thrown a lifeline not many people get such a timely response.
Viia le alofa o le Atua.
Malo le faamalosi doc. Thanks for keeping us avid readers up to date.
A Blessed week to you and urs.
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